**Small disclaimer - I tend to go into a lot of detail, so I apologize in advance if this post is T.M.I.**
(However, you must know that I really care because I have included some pretty beautiful pictures of myself! Either that, or it is the drugs taking over=)
Here I am, six days post-surgery, full of hundreds of stitches and pain like I have never experienced before, yet marveling at what an experience this has been!
It all started last Wednesday when we had to check into the hospital at 11 a.m. We took Ian to my sister's and got to the hospital without a minute to spare. We checked in and waited about 20 minutes before they took me back to get prepped. I peed in a cup and then donned the lovely blue hospital gown and compression stockings. Mike thought they were some pretty sexy thigh-high's but for some reason when I asked him if he wanted me to bring them home with us, he said no=).
Next came the i.v. I must admit that I wasn't very excited about this part. First of all, who likes needles? Also, whenever I have had to have an i.v. in the past, they have ached the whole time, and seeing as I was going to have this one in for awhile, I wasn't excited. The first try hit a valve of some sort, and hurt a lot! After poking around and agonizingly trying to move it into position, with no luck, another nurse came in and decided to try my other arm. I am so glad she came in because I barely felt it going in and it didn't bother me at all throughout my entire stay. I now have a tiny red dot where the i.v. was while my other arm has a nasty looking bruise!
Next they wheeled me upstairs where we met with my doctor and went over all the last minute details. I teared up a little as I kissed my sweet hubs goodbye and then I was wheeled toward the O.R. Just before I went in, I met my anesthesiologist and we talked for a few minutes. That's the last thing I remember. I don't even remember being wheeled into the O.R.
The next thing I knew, I was waking up in recovery with my doctor squeezing my arm and asking me how I was feeling. I cried as I said, "it hurts!" He said something to the nurse and I went out again. Apparently I was in recovery for awhile, trying to regulate my pain and get me to wake up enough to move me to my room.
I do remember that ride, and every single bump along the way!!!
Mike joined me as I was wheeled into my room, and although I know this is cheesy, I immediately felt better just from seeing his face!!
It took several hours to get my pain to a reasonable level, and I was drifting in and out of sleep the whole time. My parents were there and stayed with me for awhile. My Mom held my hand and fed me ice chips as I continuously pushed my pain pump and dozed. Eventually my parents left, and Mike settled in to spend the night with me. I slept really well that night, and was fairly comfortable - probably mostly due to the fact that I still had anesthesia in me.
Thursday went pretty well, and Mike and I just relaxed and watched movies all day. I was on a clear liquid diet, and wasn't moving around too much. I switched from the i.v. meds to pills and they took out my catheter that morning. The first time I stood up to use the bathroom was
very painful! I was
SO glad that Mike was there to help me because I soon found out that nurses were hard to find when you really needed them! It hurt to stand up straight and my incision felt like it was going to split wide open! But even as I am writing this now, it is amazing how much better everything has gotten! It is a good thing that I started with the worst pain and just went up from there because each day has made me grateful that I don't still feel like the day before it!
Mike went home Thursday night to spend time with Ian and to let him sleep at home in his own bed, and looking back, I think it is probably a good thing that he wasn't there Friday morning! I didn't sleep as well Thursday night, but still did okay. However, Friday morning was a whole different story!!! My new nurse came in at around 8:50 a.m. I told her that I was due for my next dose of medication in ten minutes, and she said she would be right back in with it. At 9:15 another nurse came by and I asked her to please track down my nurse because the pain was starting to get bad. When she still wasn't there at 9:25, I pushed the nurse call button and begged them to bring me my pills. When she finally came in at 9:40, I was sobbing! It hurt SO bad and crying hurt it even more. She saw me and said, "Oh, sorry it took me so long." I would've punched her in the face if I could have reached her, and I know Mike would have done worse! Jamie later told me that he was really pissed when he called around 10:30 and could hear the pain in my voice. He didn't even know what had happened yet, but said, "she was fine when I left her last night, so I don't know what has changed." He was none too happy when he found out.
It took me ALL DAY to get my pain back under control. From then on out, I informed each new nurse that they absolutely could NOT go one minute later than the four hours between meds or they would have he*% to pay!!!
I also learned that day that even though I wasn't hungry, I still needed to eat. I think that is part of the reason why it took so long for me to feel well again. So in addition to getting my pills on time, I made sure to eat every chance I could.
I was feeling pretty good by late Friday afternoon, and had I not still had the aforementioned "wonderful" nurse, I am pretty sure I could've gone home that night. However, she "forgot" to call my doctor to sign my discharge papers until after the clinic was already closed for the day, so I had to wait until Saturday for the on-call doctor to discharge me.
Saturday afternoon, the on-call doctor came in, signed the papers, and I was cleared to go home. My nurse removed the staples (which really didn't hurt as bad as I thought it would) and we went home. That drive was not fun!
I forgot to mention earlier, that I had been battling nausea all week. Every time I stood, and sometimes just taking the meds would make me very nauseous. Well, the drive home was no exception. I had to put my sleep mask on to block out all light, and just take deep breaths the whole way. But eventually we made it, and can I just say, what a huge difference being in your own home, in your own bed can make?!?!?!
I immediately felt better knowing that I was now in Mike's hands - that I would get my medicine precisely when I needed it and my meals would be served whenever I needed them too. Ahhhh...home sweet home!
Ian was still at my Mom and Dad's, so they headed out to bring him (and dinner) to us that night. Meanwhile, I wanted to take a shower to get the nasty "hospital" smell off of me. I told Mike to listen for the water to shut off as his cue to come help me, and I stepped in. It was hard, but it felt really, really good too! I couldn't move around much, but I still managed to wash, at least the most vital areas, and my hair. And then...the nausea was back!! I absolutely DID NOT want to throw up! With a huge incision, right on my stomach, throwing up was the last thing I wanted to do right then! So as soon as Mike walked into the bathroom, I breathed, "I'm going to throw up! I need to lie down!!" So as fast as my old lady shuffle could get me there, I laid down on the cloud bed, soaking wet and shivering uncontrollably. Mike covered me up and after about 10 minutes, and thankfully no puke, I got up and finished dressing.
Sunday brought us a new adventure. When I got up to use the bathroom, I noticed a pain in my right calf that felt like a charlie horse. I tried to pretend it wasn't there, but when several hours went by and the pain was still there, I called the doctor. Back to the E.R. for us to rule out a blood clot. No such luck! That is exactly what it was. Hooray!! Just what I wanted - one more thing to worry about! There isn't too much they can do for it, so they told me to take aspirin, elevate it and wrap it with an ace bandage, and come back in a week for another ultrasound to make sure it isn't growing or moving.
Other than that, I am happy to report that my recovery is moving along swimmingly!=)
Mike has been an absolute God send! I can tell he is a little stressed out, but the relief I have knowing that he has everything under control, is immeasurable. I can concentrate on healing and getting better and I know he has everything else under control! He is most definitely better than all of the nurses I had at the hospital combined! And even though Ian doesn't like his Mommy being out of commission, he has been really sweet too!
Each day has me moving around a little more, doing more things by myself, and feeling a little better. It really is astonishing how fast the human body can repair itself!! My incision is numb, and still quite painful. I can't walk faster than a snail's pace, and it is still hard to stand up straight. I struggle to get out of bed myself, and still need help doing almost everything. However, I can now shower
AND get dressed myself without feeling nauseous! Plus, I have gone from needing two percocet's every four hours to just one every 4-6 hours, so I would say that is progress=)
This has definitely been an interesting experience for me. I worried so much over the decision to do it or not, for many reasons. Then once I had made my decision, I still had doubts. And then there was the waiting...the waiting was the worst part!
So what would I say if you were to ask me, "was it worth it"?
As far as the surgery and recovery goes, I would say that it really hasn't been as bad as I was expecting. Yes, it is bad and I definitely wouldn't ever want to go through something like this again, but I had prepared myself for much worse, so that part, I can handle.
But the far bigger worry for me was the emotional strain that this surgery would have on my heart and on my soul. Was it worth it in that regard?
Let me answer that by telling you a little story.
Thursday morning, my doctor came into my room to check on me. He then told me what he had found once he got inside me. He told me that 20% of women will experience some form of fibroid cysts. And out of that 20%, most of those women have a large amount of uterine tissue and a smaller percentage of fibroid tissue. However, with me, it was almost the exact opposite. I had extremely large amounts of fibroid tissue, and hardly any healthy uterine tissue left. He said when holding my uterus in his hands, it felt like a bag of marbles.
Plus, one of my tubes (which were both open in 2004) was completely closed off and attached with endometriosis to the side of my colon. My left ovary was covered in endometrial scar tissue. He was able to remove my tube from my colon, and laser off most of the scar tissue from the ovary, leaving both ovaries intact. But then he said the words I really needed to hear. The words that erased all doubt over whether I was making the right decision or if I had rushed into this too soon.
He looked me in the eye and said that after getting in there and really taking a look, he can say with almost absolute certainty that I would never have been able to sustain a pregnancy. In vitro would not have worked, and us trying on our own for another 2, 5 or 10 years more would not have worked. There was simply no healthy uterine tissue left for an egg to attach to.
I started crying as soon as he walked out the door.
I made a very difficult choice to improve my own health and for the benefit of those I love and now I will always know that I made the right choice. Thank heaven for small miracles!!!
Today my doctor called to give me the pathology results. Everything came back benign, and there was also the presence of another disease we didn't previously know about - adenomyosis. Adenomyosis is uterine thickening that occurs when endometrial tissue, which normally lines the uterus, moves into the outer muscular walls of the uterus. Basically, this is like endometriosis, but inside the muscle of the uterus causing it to become enlarged and thickened, and causes a lot more painful cramping. Another confirmation that I did the right thing!
After all the intense worry and stress that I had over whether or not to do this surgery, having this knowledge now is such a HUGE blessing for me.
I am at peace, and I am grateful!!!
And I couldn't end this post without, once again, saying a very sincere "Thank You" to everyone who has called, sent flowers and gifts, or brought in food for us during my recovery. It means so much to me to know how much I am loved and missed when I am out of commission.
Thankfully this is something that can now just be a memory and I can move forward, without any regrets or doubts, into a healthier and more pain free future.
Hallelujah!!!!